Lists

As of yesterday, I've been on my own for a week. Mom left last Monday, and it's good to be self-sufficient again. Even though my rituals still keep me very limited, I don't feel like the helpless lump that I was about a month ago. There's quite a lot I want to write about in this post, and I think the content would be best facilitated by creating some lists.

I've accomplished some new (and exciting!) progress working against my OCD rituals. In the past week or so, I've achieved the following:

• Staying out of the house until 4:16
• Beginning to work on my dissertation again
• Eating more sweets (my OCD objected to candy, unfortunately)
• Completely taking care of myself, without help from Mom or Dad
• Feeling more comfortable putting effort into my appearance (wearing the clothes/jewelry/makeup that I want to)

Additionally, friends and family have offered tons of support. Did you know that my friends make up a small army of super-caring, ultra-generous, swift-acting, helper-people? Things I've received (whether tangible or intangible) include: 

• Tons of hugs, good thoughts, emails, calls, etc.
• Incredibly thoughtful cards from Kerry, Amanda, Stephanie, Lauren, Meg, Pamela and Nikki (seriously, I teared up when reading these)
• A gift from my Etsy wish list, courtesy of Lauren, that I'm anticipating with bated breath
• Coloring books (!!) from Meg
• Steven has offered Alaskan salmon that he caught
• A puzzle from Tekla
• Awesome lunch dates with Dustin, Stephanie, Amanda, and many more upcoming plans on my calendar to look forward to

Now that I'm more open about my OCD, many acquaintances and co-workers inquire about my improvement. My standard response usually alludes to how surreal things have felt, but I've been telling so many people how lucky I am to have such loving friends in my life. I, truly, would not be in such good shape and making such swift progress if it weren't for all of you. 

Frankie Says Don't Worry About Your YBOCS Score

I went to see my doctor at AustinOCD today. Every time I go into the office, he asks me to fill out the Yale-Brown Obsessive-Compulsive Scale. Commonly known as YBOCS, the scale uses a 40-point, standardized questionnaire in order to diagnose the severity of one's OCD. A score of 40 indicates the most severe symptoms,  and 0 the least.

So, during every visit to the doctor's office I re-take the survey. At my first visit to AustinOCD, I scored a 29. During today's meeting, my doctor told me that my score had dropped with each visit. Last week I was at a 26, and this week I scored 24. Because the changes with OCD recovery are so small and incremental, it's sometimes hard to tell if I am, indeed, getting better. But my YBOCS score is going down little by little. And that's a really good sign.

After we talked about my improving YBOCS score, Dr. M pointed out that despite my quickening progress, he had recorded in his notes: "She's concerned she's not doing enough work to get better." I'm assuming that this mental self-flagellation is due in part to my training in graduate school. As an academic, there are no boundaries on when and where you're supposed to work, so I usually find myself thinking "I should be working right now" during most hours of the day. Apparently this all-work-and-no-play mentality has shifted to my health! I need to learn to relax.

FAQ

My mom has been staying with me recently, and though she has a first-hand glimpse of what I've been going through, she (understandably) has questions about the manifestation of OCD. The disorder isn't realistically represented in popular culture, so there are a lot of misconceptions about it. I thought I'd write a little bit of information for anyone who might be reading this journal that has questions.

• OCD is an anxiety disorder arising because of neurological malfunctioning. Anxiety is your brain's warning system, but if you have OCD, the warning system doesn't work correctly. Therefore, you experience the sensation of danger even when you know everything's fine.
• Individuals living with OCD usually understand that their obsessions and compulsions are irrational and excessive. In TV shows and movies, OCD individuals are often portrayed as enjoying perfection, order, or cleanliness. Someone who enjoys excessive perfection or cleanliness might have Obsessive-Compulsive Personality Disorder. With OCD, however, the individual knows that their fears are irrational, but can't stop feeling afraid. They also won't enjoy performing compulsions: the only reason they do the compulsions is to relieve anxiety. 
• OCD isn't primarily about cleanliness. True, some sufferers do fear germs or dirt, and this variety of the disorder is called contamination OCD. However, other iterations of the condition might make the person fear causing or receiving harm, breaking moral codes, or getting rid of personal possessions. 
• Finally, it's often not easy to identify a person that has OCD. Frequently, when I tell someone about my disorder, they'll say "I would have never known!" or "You seem so put together!" The reality of OCD, however, is that about 2-3 million adults and 500,000 children experience the illness at any given time. Most people with OCD hide the disorder out of embarrassment. In fact, OCD has been linked to above average intelligence and high achievement. 

If you google image search "OCD brain" you can see pictures that show how an OC individual's brain works differently than those who don't have the disorder. I'm very open to answering questions from friends or family, since it's important to me to raise awareness about the realities of the illness.